Page 6 June 4, 2015 When It Comes To Arthritis, Better Education Often Leads To Better Diagnoses organization created by Congress in the Patient Protection and Affordable Care Act of 2010. Offering 21st Century-style convenience and mobility, Arthritis Power data will be collected using a smart phone, laptop, desktop or tablet where there is an internet connection. As patients track their symptoms over time - a convenient way of self-monitoring changes in fatigue, pain and physical activity - they are also securely donating their data. This information will be used by universities, research facilities, physicians and others to better understand how patients measure treatment success and satisfaction, to compare treatments, identify new treatments and, perhaps, find elusive cures. Usually patients with RA painting or other musculoskeletal conditions learn about opportunities to participate in research, such as clinical trials, from their doctor. Arthritis Power will proactively offer a variety of clinical trial opportunities and patients can decide when and how to participate. “Patient-centered clinical research means that the research questions being asked are important to patients to help them make informed healthcare decisions,” says Louis Tharp, Executive Director of CreakyJoints and its parent organization, Global Healthy Living Foundation. “Though it’s called Arthritis Power, we’re also seeking people living with arthritis and other related bone, muscle, skin or joint conditions, such as fibromyalgia, lupus, psoriasis and many others. The more people who join and share their data, the more powerful the registry will be!” It is the idea of learning from real patient experiences that most excites Rachelle about the future of arthritis treatment. “Patient-led research, like Arthritis Power, is important because patients can express how research will directly impact their lives. But in addition to advancing arthritis research, what I particularly like about the application is that I can access my personal data and send progress reports to my physician, which means we can discuss my ups and downs during check-ups. I anticipate this will make for very productive conversations.” If you are living with rheumatoid or inflammatory arthritis, or other musculoskeletal conditions and are interested in joining the Arthritis Power Research Network, visit www. ArthritisPower.org. It is free to download and participate. • PAINTERS PLUS diagnosis, Rachelle faces numerous challenges managing her inflammatory arthritis, but this mother and former special education teacher is combating her diseases just as she faces other challenges in her life - by continually seeking out education, and supporting others in the way she was supported by the non-profit CreakyJoints community, herself. In fact, now Rachelle is focused on expanding the influence of patients in health care by serving as a CreakyJoints Patient Governor to support the development and launch of a new patient-led research project called Arthritis Power. Arthritis Power is the first ever patient led, patient-centered research database for arthritis, and it is a collaborative effort between researchers at the University of Alabama at Birmingham and CreakyJoints that is supported by the Patient-Centered Outcomes Research Institute (PCORI), a nonprofit, nongovernmental handyman BILL’S HOME & APARTMENT MAINTENANCE CONTRACTOR QUALITY at Handyman Prices. We cover everything from A-Z. painting TKO PAINTING CO. INC. Knocking Out The Competition Satisfaction Guaranteed Great Competitive Prices FOR A FREE ESTIMATE Seniors (BPT) - Rachelle Crow, of Chesterfield, Michigan, is living proof that autoimmune and rheumatic diseases can affect people of any age. 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